Sensory Processing Disorder

There was an article in this months Parents Magazine, here is the link, on Sensory Processing Disorder. If you aren’t familiar with it, you probably would have just skipped over the article. I know I would have three years ago, but not now. My four year old has sensory processing disorder. She was a preemie. She has a hearing loss. We’ve been getting therapies for speech in the home and outside of the home for about four years now. Since she was a little over a year old, she has been showing signs of being sensitive to hot and cold, being full and hungry and just all over the place wound up. We had a Occupational consult when she was maybe two and while she did not qualify for sensory therapy, we were given a plastic brush, which we use on her when she’s all wound up or upset. We learn techniques with tight blanket wrapping and swinging her in a blanket,having her lift things and she also has a “vibrating chew toy” and some “chewelry. It sounds hokey but it worked, she’d be fired up about something, and we would brush her or work her joints and she would settle down.
Last year her symptoms were changing and getting a bit more worrisome, she doesn’t like tags in clothes and she has no reaction to scrapes and falls, but can’t handle warm water, but can take a bath in an ice cold tub with no reaction. So her pediatrician sent us for a consult again. I phoned a place that specializes in occupational and sensory therapy and was told I would be on a waiting list several months long. I was also told my insurance would not cover the consult because it was not a recognized condition. How frustrating. I ended up getting the consult from our intermediary unit and was told again she wasn’t far enough affected to qualify for services, but was given some more exercises and treatments to use. It’s frustrating as a parent. I mean it seems silly, my kid is having a strong reaction to what ever is bothering her, and I can brush her with a plastic brush or let her chew on a toy and it settles her down, but it’s there and she has it as do other children. To write it off and say insurance won’t cover it because it isn’t recognized is silly.
I’ve been fighting for my child for almost five years. She has a hearing loss and needs speech, but her speech therapists will not use the hearing loss as a cause because she’s only deaf in one ear. Yet when she finally got her hearing aid, it was like the sun shining through the rain storm. And when she talks you can hear the change in her pronunciation and you can hear how she has been hearing things.
The thing is, so many kids have so many different things and parents shouldn’t have to fight so hard. Parents know their kids and that’s usually how issues are discovered. And nothing is ever too silly or strange, and if your doctor doesn’t assist you in looking into things, then get another doctor. It’s always very nice to be able to read about these conditions that not many people know about in a great magazine like Parents. I just wish magazines carried more information on Pre-Eclampsia for expectant mamas, that would be fantastic.

About this entry